$15.00 for a long sleeve shirt and $13.00 for a UV protective hat. Albinism workshop supplies: $65.00, notebooks/journals set of 60; $50.00, dry erase sheets; $35.00, plastic folders set of 35; $15.00,markers; $10.00, pens; $6.00, tape; and $5.00, sticky notes pads. Amani for Albinism (AforA) is a one-week personal and professional development program dedicated to the socio-economic advancement of people with albinism (PWA) and caregivers of children with albinism in East Africa.This workshop will be given in July 2020 in Nairobi, Kenya to caregivers, mostly mothers, of children with albinism. These mothers often do not have albinism themselves but are ostracized by society due to the stigma attached to the condition of their children.
Albinism is a rare genetic condition that reduces the amount of melanin in one's hair, eyes and skin leading to several physical and particularly social impediments. Due to the lack of melanin in their skin, people with albinism are more sensitive to the sun, consequently protective clothing and sunscreen are very important. In East Africa, the estimated 40,000 PWA and their families are at an added disadvantage as their strikingly different appearance and the lack of proper medical and educational infrastructure create multiple challenges to their full social and economic realization.
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$15.00, long sleeve shirt
$13.00, UV protective hat
$50.00, dry erase sheets
$35.00, plastic folders set of 35
$5.00, sticky notes pads